The APF precedes the International Symposium on ALS/MND by one day, but still attracts a global audience. It enables professionals from a wide range of disciplines to gather from around the world and share experience on the treatment and care of the disease. I had the privilege of presenting at the Brussels APF three years…… Continue reading Allied Professionals Forum 2017, Boston: A view from the podium
A revolutionary new collar which will benefit people with MND and others with weak neck muscles was launched at the Symposium. People with MND can experience head drop as a result of neck weakness, which in turn can cause pain and difficulties with communication and swallowing. In the past, many of the cervical orthoses available…… Continue reading The 100 collars project: A multi-centre evaluation of the HeadUp cervical orthosis
The end of September saw the World Frontotemporal Dementia Awareness Week, as important as any awareness week. For those who are not familiar, Frontotemporal Dementia (FTD) is recognised as one of the most common young onset dementias, usually characterised by behaviour change, language problems and difficulties planning or organising. It is very important to note…… Continue reading Insights into ALS/MND research from the Frontotemporal Dementia UK (FTD UK) 2017 meeting
As an occupational therapist, I am interested in how people continue to find meaning, purpose and achieve quality of life in the face of continued loss of function and disability. With this in mind, I was struck by two presentations at the Symposium. First off a bit of background to set the scene. When writing…… Continue reading Quality of life and MND – insights from the Symposium
Ask me anything about triple positive breast cancer. Most of the time, I will know the answer. I possess this seemingly random expertise because I have spent the last year making it my business to learn everything I possibly can about triple positive breast cancer in young women. I wanted to understand what was facing…… Continue reading The Case for Patient Participation
