The Researcher

Are you interested in hearing the latest news from the Motor Neurone Disease (MND) Association? Do you want it delivered straight to your inbox with reminders about grant deadlines and MND-related meetings?

The Researcher is the MND Association’s research e-newsletter to our research community. We have posted our December e-newsletter below. If you would like to receive future copies of The Researcher please email

Click here to view the December e-newsletter in full on a webpage

Dear Colleagues,

Welcome to the sixth edition of the MND Association’s e-newsletter The Researcher, where we aim to keep MND biomedical and healthcare researchers up to date with the Association’s activities.

This e-newsletter, on the week before Christmas, welcomes Ludo Van Den Bosch to the Biomedical Research Advisory Panel and gives thanks to our symposium ReCCoB reporters, who kindly reported back from the symposium in Milan earlier this month.

With the help of TV presenter Nick Knowles, the Association broadcast its first television advert to help raise awareness of MND this Christmas.

Reminders this Christmas include our research noticeboard, where you can find information about the ALS Association’s January 2014 grant round as well as a meeting in Oxford later in the New Year. Finally, we would like to remind grantees that our Terms and Conditions have recently been updated.

Whether you are just starting your PhD, or well into your research career, The Researcher will help you by sending you details of grant deadlines, upcoming meetings, awards, reminders and other opportunities to get involved in working together towards a world free of MND.

If you wish to add any items to our future e-newsletters please contact us on or by telephone 01604 611 806.

In the meantime, we would like to take this opportunity to wish you a very Happy Christmas.

Kind regards,
Samantha Price
On behalf of the Research Development Team

ludoWelcome to Ludo Van Den Bosch 

Ludo Van Den Bosh has recently joined our Biomedical Research Advisory Panel (BRAP). Ludo also attended this year’s symposium in Milan and we would like to take this opportunity to welcome him to the panel:

“I have always had very good contacts with the MND Association and, as such, I am on the symposium programme committee. Next year the symposium will be in Belgium and I recently wrote a guest post on the MND research blog about the committee’s role within the wider-symposium picture.

“I am extremely delighted to be joining the BRAP and I look forward to helping the panel decide on future MND research projects, which aim to work towards a world free of MND

dec13Our first Awareness advert

An advert to raise awareness of MND featuring TV presenter Nick Knowles and Eric Rivers, who has the disease, was shown on television screens from 9 December 2013.  A first in the history of the MND Association.

Nick said it has been an ‘honour’ to work with Eric. He Said: “Eric is about the bravest and most honourable man I know, a fine husband and great Father.” You can watch the advert here.

Researchers report from Milan!MND Symp logo

This year we had the largest number of researchers and healthcare professionals to date reporting from the 24th International Symposium on ALS/MND in Milan earlier this month.

Reporting on our peer-to-peer blog ReCCoB, you can view the reports on the autonomy and quality of life, therapeutic strategies, RNA processing and protein dysregulation sessions.

Reports from MND-related meetings taking place worldwide are added to ReCCoB throughout the year. If you, or any of your colleagues, would like to report on future meetings please email

We would like to take this opportunity to thank our ReCCoB reporters, and we look forward to the blog being updated throughout 2014.

Reminder items:

dec5Our acceptance speech: Had a paper accepted? Please remember to share the great news with us – and to acknowledge our funding. We can help share the news with people living with MND.

From our point of view showing the results of what we fund helps us secure more funding for future work. Please contact the research grants team for help with this.

dec6Resources for researchers: The Research noticeboard has up to date information on MND-related meetings, grant deadlines and awards including:

  • ALS Association call for research abstracts. Deadline 13 January 2014
  • Marie Curie Cancer Care end of life care research call. Deadline 17 January 2014
  • Athleticism, Cardiovascular fitness and Energy metabolism in ALS (ACE) workshop in Oxford from 10 – 11 March 2014.

dec3Terms and Conditions grants update: We would like to make grant-holders and applicants aware that we have made some revisions to the Terms and Conditions of our Biomedical Project Grants, Studentship Grants, and Healthcare Grants

The new versions will now apply to all current grants and will allow the costs of poster preparation to be claimed from the expenses budget. Please note: The Healthcare Grants Terms and Conditions are not yet available on the website and we will be sending out copies to grant holders in the New Year.