Alongside the International Symposium on ALS/MND, Karen Pearce’s trip to Dublin in December included attending a number of other, MND-related meetings. The first meeting she attended was the final stage of the Prize4Life Assistive Technology Challenge, sponsored by the ALS Association. The aim of the Challenge was to generate the development of flexible, accessible technology to…… Continue reading Highlights from the final of ALS/MND Assistive Technology Challenge
Motor neurone disease (MND) can cause weakness in the chest muscles involved in breathing. This leads to shortness of breath and symptoms including disturbed sleep and headaches. Ventilation support allows a person to breathe more efficiently and can also extend survival. The MND Association has funded research into respiratory management and ventilation support for people…… Continue reading Withdrawal of ventilation support at the request of a patient: the ethical, moral and legal issues
My name is Rachel Patterson, and I am the General Manager of the International Alliance of ALS/MND Associations. I’m writing this ReCCoB post to make you all aware that the deadline for abstract submissions for the Allied Professionals Forum is this Monday (15 June 2015)! About the Alliance The Alliance is a membership organisation for ALS/MND patient care, advocacy and…… Continue reading Allied Professionals Forum – abstract deadline fast approaching!
Posted on behalf of George Aynsley (Liverpool, UK): In my final post from the symposium, I report on the End of Life Discussion session: This was a fascinating session as it brought 3 superb international speakers into the forum. Given the varying legality of euthanasia across countries, a discussion highlighting differing approaches was elucidating. I…… Continue reading Copper Room with a View – End of Life Discussions
Posted on behalf of George Aynsley (Liverpool, UK): In my second post, I report back on the Care Practice session: Digitalisation As we succumb to the digital age, recognising how it infiltrates all aspects of how we practise healthcare, being wary of the pros and cons, means we can utilise it and apply it in…… Continue reading Copper Room with a View – Care Practice