As an occupational therapist, I am interested in how people continue to find meaning, purpose and achieve quality of life in the face of continued loss of function and disability. With this in mind, I was struck by two presentations at the Symposium. First off a bit of background to set the scene. When writing…… Continue reading Quality of life and MND – insights from the Symposium
Alongside the International Symposium on ALS/MND, Karen Pearce’s trip to Dublin in December included attending a number of other, MND-related meetings. The first meeting she attended was the final stage of the Prize4Life Assistive Technology Challenge, sponsored by the ALS Association. The aim of the Challenge was to generate the development of flexible, accessible technology to…… Continue reading Highlights from the final of ALS/MND Assistive Technology Challenge
The first of the clinical sessions covered a variety of topics related to the clinical care and symptom management of patients with ALS/MND. This session opened with Professor Orla Hardiman from Ireland speaking about the importance of specialist multidisciplinary clinics in the care of ALS/MND patients. There is evidence that patients who attend such clinics…… Continue reading Session 2B: Clinical management
Motor neurone disease (MND) can cause weakness in the chest muscles involved in breathing. This leads to shortness of breath and symptoms including disturbed sleep and headaches. Ventilation support allows a person to breathe more efficiently and can also extend survival. The MND Association has funded research into respiratory management and ventilation support for people…… Continue reading Withdrawal of ventilation support at the request of a patient: the ethical, moral and legal issues
My name is Rachel Patterson, and I am the General Manager of the International Alliance of ALS/MND Associations. I’m writing this ReCCoB post to make you all aware that the deadline for abstract submissions for the Allied Professionals Forum is this Monday (15 June 2015)! About the Alliance The Alliance is a membership organisation for ALS/MND patient care, advocacy and…… Continue reading Allied Professionals Forum – abstract deadline fast approaching!