My name is Rachel Patterson, and I am the General Manager of the International Alliance of ALS/MND Associations. I’m writing this ReCCoB post to make you all aware that the deadline for abstract submissions for the Allied Professionals Forum is this Monday (15 June 2015)! About the Alliance The Alliance is a membership organisation for ALS/MND patient care, advocacy and…… Continue reading Allied Professionals Forum – abstract deadline fast approaching!
The sessions we attended today at the 24th international symposium included autonomy and quality of life, cognitive and psychological change. Hogden, from Australia described a decision making model which was originally used in cancer care. She highlighted that there were lots of important decisions that patients need to make but these are made more difficult…… Continue reading Day one of ALS Symposium
Wow what a day! The MND clinic girls from Notts have been inspired with what we have heard today. Amber Ward OT from USA and Mel Holmes OT from Australia, talked about the wonders of velcro for example how to secure your communication aid to your lap to prevent it slipping . They also described…… Continue reading Our highlights of the Allied Professionals Forum
The MND clinic girls from Nottingham have arrived in Milan and are looking forward to a day of learning and networking. We are particularly looking forward to the presentations on multidisciplinary working, AAC apps and decision making for enteral nutrition in ALS/MND.
A really good APF this year, with a record attendance – over 346 delegates during the day with themes around technology, end of life, carers and care giving and supporting children in ALS families. Some really good presentations, particularly around carers issues. A presenter argued that a psychoeducational programme for caregivers of patients can improve caregiver knowledge and can…… Continue reading Allied Profeessionals Forum meeting and Symposium reflections