I just came back from the 23rd International Symposium on ALS/MND in Chicago. While recovering from my horrible jet lag (I live in Dublin, those 6h difference do not set well on me…) and the 14h trip, I got myself reviewing what I learned. First, I need to say that I only had half of the information…… Continue reading The Human Side
A really good APF this year, with a record attendance – over 346 delegates during the day with themes around technology, end of life, carers and care giving and supporting children in ALS families. Some really good presentations, particularly around carers issues. A presenter argued that a psychoeducational programme for caregivers of patients can improve caregiver knowledge and can…… Continue reading Allied Profeessionals Forum meeting and Symposium reflections
In recent years the MND Association has funded healthcare research into cognitive and behavioural change in people with MND. To get an update on the latest research in this area, and to understand its impact in supporting people with MND and their families, I attended the first clinical session of the International Symposium – dedicated…… Continue reading Information to help manage cognitive change
The Symposium has begun! I’m so excited to attend the 23rd International Symposium on ALS/MND! This is my first time attending the conference and I’m elated that it’s here in Chicago (one of my favorite cities). I have volunteered with persons with ALS for the past seven years, volunteered with various ALS organizations (like the…… Continue reading Day 1!
Neurologist and natty dresser Dr Rick Bedlack, from Duke ALS Clinic in North Carolina USA, took on a challenging topic of patient decision making at this afternoon’s session of the 23rd In ternational Symposium on ALS/MND from the perspective of different decision making models. In quite a philosophical talk, he framed the discussion of the…… Continue reading Lets talk together