Healthcare

Allied Profeessionals Forum meeting and Symposium reflections


A really good APF this year, with a record attendance – over 346 delegates during the day with themes around technology, end of life, carers and care giving and supporting children in ALS families. Some really good presentations, particularly around carers issues. A presenter argued that a psychoeducational programme for caregivers of patients can improve caregiver knowledge and can…… Continue reading Allied Profeessionals Forum meeting and Symposium reflections

Clinical · Healthcare

Information to help manage cognitive change


In recent years the MND Association has funded healthcare research into cognitive and behavioural change in people with MND. To get an update on the latest research in this area, and to understand its impact in supporting people with MND and their families, I attended the first clinical session of the International Symposium – dedicated…… Continue reading Information to help manage cognitive change

Insights

Day 1!


The Symposium has begun! I’m so excited to attend the 23rd International Symposium on ALS/MND!  This is my first time attending the conference and I’m elated that it’s here in Chicago (one of my favorite cities). I have volunteered with persons with ALS for the past seven years, volunteered with various ALS organizations (like the…… Continue reading Day 1!